Peyton has been under the weather lately, it started late last week. Everyone has been working hard to help her recover from this latest round. Her heartrate and oxygen levels have been up and down. Lots of prayers have been coming our way and we thank everyone for them. On a brighter note.... A new friend has come into the house, it is a hamster!! The girls just love it!
I just wanted to share about Peyton's day yesterday. She was so focused, and so involved for the entire afternoon, and she was really using her muscles!
We had her involved in a variety of sensory activities...."ice skating" with her feet in shaving cream (wow! she was really moving her leg muscles!) and fingerpainting while in the stander. Again, she was really engaged in doing her work with her hands this time. Finally, during snack, she chose a "banana split" lollipop, and was independently holding it and raising it to her mouth. Lots of language for the afternoon as well. Way to go, Peyton! I am continually impressed by her skills and desire to show us what she can do!
It's 1:12 in the morning on a Wends. and I am up working on Peyton's site. We are getting ready to start planning the 4th Annual Par 4 Peyton!! The date is set, the Golf Course is booked and the ball is rolling. I almost feel like we just finished wrapping up the loose ends from the 3rd annual. I am going to admit....it is hard work...it gets frustrating at times...and sometimes I think to myself "I can't do this again next year" But Every year, when we hold Par 4 Peyton my heart is touched. I am touched by the support of so many. The thought of so many people coming together to help find the cure for this devastating disease is amazing. With that support I get my strength to do it again!!
So, here I sit at 1 in the morning, filled with excitement and hope. I know that this year is going to be the best EVER!!! I have so many great things planned and some new ideas to try!! So many businesses are involved and even though it's January we already have teams wanting to reserve their spots!!!
I can't wait to see what comes along our path on this crazy adventure. If you would have told me 5 years ago that I would be running a foundation and planning charity outings, I would have said your nuts. But then in 2008 Peyton was born, and we all were forever changed. She has taught me that anything is possible, with hard work, hope and a lot of prayers!!!
Jan. 17, 2012
Dear Mr. Bob Marshall,
... Before you read this letter, please take a look at the date. 2012- in 1865 slavery was abolished, in 1870 blacks were grated the right to vote, 1920 women were granted the right to vote, and now in 2012 there are 6 states that legally recognize same sex marriages. Now, let me take you to July 4, 1776 when our founding fathers drafted the Declaration of Independence-
“We hold these truths to be self-evident, that all men are created equal, that they are endowed by their Creator with certain unalienable Rights, that among these are Life, Liberty and the pursuit of Happiness.”
Let me bring you to Feb. 2010, were you made this statement.
The number of children who are born subsequent to a first abortion with handicaps has increased dramatically. Why? Because when you abort the first born of any, nature takes its vengeance on the subsequent children,” said Marshall, a Republican
I understand that you have since then tried to recant your statement, or change your wording. However, you as a representative of the people of Virginia should be ashamed of yourself for speaking such vile, hateful and discriminatory language. In that moment on Feb. of 2010, you were not speaking for the people of Virginia or America. You sir, were speaking for yourself and your discriminatory views.
It is obvious that you do not have, know or have ever come in contact with a disabled person. Which I find strange, since there are pictures of you on your website with disabled children. Were those shot for promotional reasons only? Did you use a green screen and just photo shop children in there? Because, if you had actually come into contact with those children you should have learned far better from them.
Spinal Muscular Atrophy, the leading genetic killer in infants under the age of two. This is what my niece was diagnosed with in 2008. She was born to a loving family, to a mother who did not a previous abortion. So how could that have happened? Why would nature take a vengeance on this family? I do believe that you should educate yourself more prior to speaking publicly. You’re a politician, you should be speaking of laws, rights, freedom, not about nature. You know nothing about how nature works.
Let me tell you what I have learned from my niece Peyton Elsner and all the other disabled children, and adults. I have learned acceptance, respect, and gratitude for what you have. I have learned undying love and that you can truly have a scar on your heart that will last a lifetime. I learned to cherish every moment that you have and to be grateful for them. I learn from her everyday! I am so grateful that she is in our lives. She has already changed the lives of so many for the positive. Which is what you should be doing, Mr. Marshall, making positive changes in this world, not spreading hate.
Peyton is now 3, she has beat the odds. She can not move her arms, legs, or hold her own head up. She has to eat through a feeding tube in her belly, and her life depends on many machines that she uses everyday. However, everyday she is happy and loves life.
The odds are against her because of her SMA. She surely does not need people like your self against her also. So, if you have time in between all your press conferences, socialite dinners, and campaigning, please take a moment to educate yourself about disabled children. We would appreciate it.
I am blessed to be the Aunt of Peyton. She has changed my life in so many ways. I will fight, to save her life and the lives of so many others with SMA.