I almost lost pey tonight. I believe she through a plug and stopped breathing. I helped her fight for her life for 45mins before I could get her somewhat stable and another hour before transport to the hospital. It was the scariest thing I've ever seen. When I say fight for her life I mean it, I truley thought she was going to die in my arms. It's something that a lot of sma parents deal with constantly, this is the closest I've been, I wouldn't wish what I witnessed on anyone.
We are at waukesha, stable, shes back to her sassy self like nothing happened, extremely exhausted tho. We are being transported to madison to make sure shes all good.
I never knew how good it would feel to have ur daughter yell at you. Brings tears of joy, yell away peyton, sassy daddy!
I love you more than you could imagine and would trade places with you in a heartbeat!
I am blessed to be the Aunt of Peyton. She has changed my life in so many ways. I will fight, to save her life and the lives of so many others with SMA.